Papers

Last updated 2020

Non-severe haemophilia:  Is it benign? - Insights from PROBE study.

Chai-Adisaksopha C, Noone D, Curtis R, et al. Non-severe haemophilia: Is it benign? – Insights from the PROBE study. Haemophilia. 2020; 00:1-8. https://onlinelibrary.wiley.com/doi/epdf/10.1111/hae.14105

Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience

Chai‐Adisaksopha, C, Skinner, MW, Curtis, R, et al. Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Haemophilia. 2019; 25: 365– 372. https://doi.org/10.1111/hae.13703

 

Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

Chai‐Adisaksopha C, Skinner MW, Curtis R, et al. Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains. Haemophilia. 2019; 25:75–83. https://doi.org/10.1111/hae.13649

 

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire

Chai-Adisaksopha C, Skinner MW, Curtis R, et al Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire BMJ Open 2018; 8:e021900. doi: 10.1136/bmjopen-2018-021900. http://dx.doi.org/10.1136/bmjopen-2018-021900

 

The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia

Skinner, M. W., Chai-Adisaksopha, C., Curtis, R., Frick, N., Nichol M., Noone, D., O’Mahony, B., Page, P., Stonebraker, J. S. and Iorio, A. (2018). The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia. Pilot and Feasibility Studies, 2018 4:58. doi: 10.1186/s40814-018-0253-0